Information and Resources about Autism
A wide range of information and resources about autism are available to those who would like to learn more. This includes guidance, training, research, and videos of people talking about living with autism. The resources listed below are free but you may need to register to use them.
The NHS choices website has a large information section about autism:
- Homepage: www.nhs.uk/Livewell/Autism/Pages/Autismhome.aspx
- About Autism www.nhs.uk/conditions/autistic-spectrum-disorder/pages/introduction.aspx
- Diagnosis in adults www.nhs.uk/Livewell/Autism/Pages/Diagnosisinadults.aspx
- Caring for someone with autism www.nhs.uk/Livewell/Autism/Pages/Helpparentscarers.aspx
National Autistic Society (NAS)
The NAS website contains a great deal of information about various aspects of living with autism. Here are a few links that might be useful:
- How to get a diagnosis www.autism.org.uk/about/diagnosis/adults.aspx
- Getting older with autism: http://www.autism.org.uk/about/adult-life/ageing.aspx
- Women and autism: www.autism.org.uk/about/what-is/gender.aspx
- Mental health and autism: www.autism.org.uk/about/health/mental-health.aspx
- Self-advocacy: The National Autistic Society has published a self-advocacy guide, developed by a group of adults with autism. It is designed to help people with autism communicate their wishes and needs to the people they meet. Download the leaflet
Many people wonder if they might be autistic when they have read or seen on TV something that seems to describe their experience. Some people develop strategies for coping with their lives while others may find things more of a struggle.
Psychologist Professor Simon Baron-Cohen and colleagues at the Autism Research Centre at Cambridge University have created the Autism-Spectrum Quotient (AQ) which measures autistic traits in adults. This is NOT a diagnostic test but may help you to decide whether or not to seek a formal diagnosis by going to see your GP.
If you need further advice about the test or your score, contact Greater Manchester Autism Consortium on 0161 998 4667.
Positive about Autism
Positive about Autism provide a free monthly newsletter, full of positive news about autism, training events, research and helpful advice. You can sign up to receive it on their website, www.positiveaboutautism.co.uk
Stockport Council runs a number of free training courses for people with an interest in autism - Visit the Council's training webpages for more information about courses available www.stockport.gov.uk/autism-awareness-training/autism-awareness-overview
Legislation and guidance
- Autism Act 2009
“An Act to make provision about meeting the needs of adults with autistic spectrum conditions; and for connected purposes”. The only piece of disability-specific legislation in England.
- Fulfilling and Rewarding Lives: The strategy for adult with autism in England March 2010
The government’s strategy aimed to set a clear framework for all mainstream services across the public sector to work together for adults with autism.
- Think Autism
Fulfilling and Rewarding Lives, the strategy for adults with autism in England: an update April 2014.
This document contains the fifteen priority challenges for Action that were identified by people with autism, carers, professionals and others who work with people with autism.
- Statutory guidance for Local Authorities and NHS organisations to support implementation of the Adult Autism Strategy March 2015
This document describes the nine themes of the statutory guidance and includes instructions about what local authorities and health organisation must do and should do.
- Social Care Institute for Excellence SCIE
This guide helps people in the health and social care sector who work with adults with autism to increase their awareness, knowledge and understanding.
- NICE Guidance
NICE quality standards describe high-priority areas for quality improvement in a defined care or service area. Each standard consists of a prioritised set of specific, concise and measurable statements. They draw on existing guidance, which provides an underpinning, comprehensive set of recommendations, and are designed to support the measurement of improvement. This quality standard covers autism in children, young people and adults, including both health and social care services.
Research, facts and figures
Joint Strategic Needs Analysis (JSNA)
The 2015/16 Joint Strategic Needs Assessment (JSNA) is part of a process designed to develop a shared understanding of health and care needs in Stockport. It uses information and intelligence to identify priorities to help local partners work together to deliver change which improves the health and wellbeing of people in Stockport and reduces health inequalities.
Every local authority is required to prepare a JSNA that aims to give a picture of the number of people in Stockport with certain illnesses or disabilities– and the variations by gender, age and deprivation, plus the common co-morbidities. Information about autism can be found on page 29.
In 2013, we prepared the first Autism JSNA for Stockport. We are in the process of updating the Autism JSNA and the 2017 document should be on the website by the summer.
Autism@Manchester brings together academics, clinicians and members of the autistic community. It is an active network with research covering areas as broad and diverse as education, psychology, speech and language therapy, neuroscience, biosciences and genetics. Research carried out by academics and clinicians in the network can be grouped under two main themes: understanding autism and autism interventions. Researchers are often looking for volunteers to participate in their autism research.